So much has gone on in the past couple of weeks. First of all I can't believe the boys have been Home 5 weeks already!!! They are both adjusting so well & are learning new things every day. Charlie L-O-V-E's to go to school. Every day we pull up to the car rider line & he signs PLAY and claps his hands and say YAY!!! Puts his backpack on his back, picks up his lunch box and waves bye to Levi & blows him a kiss. Then Levi cries:( Poor little guy. I make 4 stops to drop off kids and he cries everytime someone gets out of the van. lol We are still desperately trying to find something to help Charlie stop putting his entire hand in his mouth & sliming everything & everyone. Suggestions are welcome:) Levi is still getting meds every 6hrs through his picc line. His labs have looked good, but he has had fever for 4 days. They have not been able to find the source, but think it may be viral after he broke out in rash yesterday. He has had a more extensive Echo done on his heart and the infection looks the same, plus he had a small amount of fluid around his heart. But the Good News is the cardiologist thinks he may NOT need heart surgery!!!! It actually looks like there is a super thin membrane across the VSD. So he will continue to monitor him until after his oral surgery and then decide if he will need any intervention. Currently, he is scheduled to have surgery on Dec. 1st. The ENT will remove his tonsils, adenoids, and put tubes in his ears.(this is being done now to help the sleep apnea & get ride of infection) Then the Dentist will follow him to surgically remove his remaining rotten teeth. It will not be fun:( Please pray for these docs and especially for the anethesiologist that will be attending the surgery. He will spend at least one night in the hospital and then hopefully heal quickly and feel like a new man! What a good little patient he has become. He know's the routine now; holds his arm out, lets them do whatever they need to do. I am so proud of him!
Charlie Asleep at door. He might miss something!
Patiently waiting for Sis's B-day cake. Kinda....
