The boys are doing great!
Levi is finishing up the final week of his meds for the endocarditis. Woot! Woot! This means no more daily trips to hospital for outpatient meds 9am & 9pm, no more weekly trips to cardiologist for echo, no more weekly blood draws. Levi will be missed at the hospital I am sure, and I am sure he will wonder why we no longer go. lol... He is eating like a champ with no teeth, & feeling great! He talks all the time, we just have no idea if what he is saying is Russian or if he is just jabbering. ha! We will see the cardiologist in 4 months to confirm whether or not they will close the opening in his heart. But for now it is functioning properly & there is no pulmonary hypertension. Yay! We will be seeing an opthalmologist in a few weeks and hopefully we will open up a whole new world to him with the gift of good sight! And... Monday he starts school with Charlie:) He will Love it!
Charlie Is doing great! He has missed being in school a lot the past 2 weeks & I am sure he will be excited to return to his routine. He is much more verbal now & is attempting to repeat words although they are hard to understand. He has about 15 signs that he uses, but he also says the words when he signs. His favorite signs??? EAT, MORE, NO! He is very stubborn and will refuse to do things.(Imagine that) Like pull his pants up or put his shoes on. But he hates to be ignored. So many times he will comply if we just ignore. His eating & drinking has improved. Taking smaller bites & eating slower(most times) and we are working on drinking from a cup with his tongue in. He tries so hard & we are so proud of him. He had an ultrasound last week & will be having surgery soon to repair some urinary issues, and then surgery to remove his monsterous tonsils. Please be praying that he handles it well. He is NOT a star patient! Ha! Also, we are watching his weight closely. He has lost 4lbs since coming home despite the fact that he eats like crazy. He was negative for celiac and his labs looked great! He also saw the cardiologist & his ASD is in fact closed!!! His only remaining defect is an enlarged aorta which generally does not cause a problem. As long as he puts on weight we will not see cardiologist for 1yr, but if he doesn't they will recheck him in 6 months.
We can not express to all of you how thankful we are for each & every one of you! You have all played a part in bringing these two boys into a family that loves them and we are forever grateful for your love & prayers...