It's been a while since I've posted. Things are busy here, but great! I can't believe it has been 8 weeks since the boys joined our family. Levi has been feeling better and better everyday. I think for the first time in his almost 4yrs he actually feels well!! We are finding that there is a little stinker behind that sweet little toothless smile. Ha!!! Tomorrow we are making the 4 hr drive to Cook Children's to see a cardiologist. Hoping to find out if we are or are not going to have to have heart surgery. He is still getting meds twice a day through his picc line and his labs have been good:) He is also getting meds for urinary issues as well:( Hopefully that will resolve. He absolutely loves to "Go". If any one heads to the door, grabs keys or puts a jacket on; He's running to put on his hat, jacket, and shoes. lol Charlie is doing great! He loves school & he is like a little sponge. He is having an echo on Wed. & we are trying to get him in to see what is going on with his vision & hearing on his right side. Oh, and apparently he had a hernia repair surgery that they didn't tell us about. Ooops!! Our entire family is so Blessed!! Everyone is adjusting well & most days it feels like our two newbies have been with us forever!
1 week ago